Fanfan and his older brother Guo live with a wonderful, supportive mother. Guo, the eldest brother, is twelve years old and has autism and a cognitive delay. His younger brother Fanfan is five years old and has since been diagnosed with Rasmussen’s Encephalitis, Hepatitis B and Epilepsy. This has caused cognitive impairment and delays in his motor skills.
At a young age Fanfan began therapy and learnt to walk with assistance, however as the severity of his seizures increased, it was determined that Fanfan needed to undergo brain surgery. Following the surgery, Fanfan no longer has seizures.
Recently, our Cross Care Teams did a full assessment and set goals to support his gross motor, fine motor, and learning skills. Along with that, we also took measurements to fit him for a lightweight and portable wheelchair so that he is better supported.
Fanfan has received several therapy sessions at home, which have also included parent education and training. His mother has loved learning new skills and regularly sends pictures and videos of her performing the exercises with Fanfan. She is very grateful, and says that she has increased confidence supporting Fan Fan’s therapy goals at home. Fanfan’s father recently joined in a therapy session in our center – it was beautiful to see Fanfan’s joy at having his father attend the session.
Fanfan’s mother has expressed doubts that Guo will be able to go much further with his education within the public school system. At FPP, we are currently looking into vocational training and social inclusion opportunities that will assist young people who are not able to acclimate to the system. We are planning to be able to continue to support the family in this way.